One Down, Three To Go!

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Emerson has made a full recovery! I think the rotavirus is out of her system, thank goodness! Not that I will stop worrying about her having more seizures, though. I worry when I’m home alone with all the kids. I worry when she’s sleeping. I freak when she starts crying and when she has a coughing fit. I’m so scared, and I know that will lessen in time, but for right now I can’t stop picturing her purple, limp body lying there. I don’t know what I’d do if I lost my beautiful, funny, amazingly smart little girl.

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But I didn’t. And I’m so lucky! I will be thankful for her and all my babies every day.
The others seem to be on the mend. Poor Deacon seems to be the saddest sack. He sleeps a lot, and when he’s awake he’s usually just lounging on someone’s lap. He’s eating and drinking though, which is great.

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Brody is better, and has been acting more and more like his old self – getting into things he shouldn’t be! But he still is fighting the bug, and it kicks his butt sometimes!

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Hayden just wants to cuddle with Pappy all day. She’s just so sweet and pitiful when she’s sick. But like Brody, she’s acting more alive each day.

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Poor Easton is a bit attention-starved, and really needs to get out and burn some energy! Surprisingly, he hasn’t caught the virus, thank goodness. But cranky Easton who needs a nap is worse than three sick kids combined! He really tested the limits of my patience today, but then he poses ave wants me to take his picture, and he makes me laugh.

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So we’re surviving here. Trying to clean, disinfect, sanitize, cuddle, feed, wash, change, hold, carry and dispose, all the while trying to take care of myself. I just finished my antibiotic for bronchitis but I’m not sure if the infection is done with me! Hopefully in the next couple days we can beat these germs out of our house and have a nice Easter, although since we are quarantined, we can’t have our guests!
I can’t wait to get back to normal, whatever that is!

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Out of the Pot and into the Fire

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Emerson and I got to come home yesterday!  I can’t tell you how amazing it was to sleep in my own bed last night and to take a shower!!!
Em is doing great. The VEEG overnight was great, and she ate breakfast in the morning so they felt she could go home. The neurologist recommended keeping her on the Keppra for six months, so she takes a small liquid dose twice a day. It’s just a precaution really, because having had three seizures, she’s more likely to have more, and it’s more likely to be worse.  She well have an MRI as an outpatient just to make sure there is nothing else going on, and we will follow up with the neurologist. We also have a couple emergency doses of diazepam that we would administer if she had another seizure that lasts at least three minutes.
At home she’s the healthiest one we got!  She is eating pretty well, and it’s relatively active, although she’s even more of a drunken sailor now! A side effect of the Keppra is loss of balance and coordination, which she didn’t have a lot of anyway! And {knock on wood} her diarrhea seems to be gone today!

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The others are a bit miserable. They just lay around and they don’t want to play. They weren’t eating or drinking until we got a prescription for Zofran, an anti-nausea medicine. After they took that they started eating and drinking water, which was a huge relief.

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I love the cuddling, but I’d rather they were feeling better! Rotavirus is AWFUL!

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They still have diarrhea, and Brody is still throwing up, so there’s lots of cleanup and laundry to do! I’m contemplating calling in a biohazard team to clean up after this bug is passed. I’m also shopping for new couches – easy to clean leather ones! 

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Easton continues to be unaffected by this virus…Thank goodness!!!
Continued thanks for all the support…it really means so much to us to have offers of help, concern for us and resources for info from people who have also dealt with seizures. It’s all amazing and touching and we’re grateful!

Rotavirus in the House!

Emerson’s stool sample came back positive for rotavirus. One piece of the mystery solved. So now all the staff who come in her room have to wear a gown and gloves. I feel like she’s an Ebola patient!

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Today has been a long day. Em was on the VEEG all night and all day. We were supposed to see the neurologist this morning to see how her brain activity was overnight, but in typical hospital fashion, we didn’t get word or see her until almost dinnertime. She saw slowed brain activity at times, which she thought was probably just her brain recovering from the seizures. So she then left to go check how her brain activity was today, and over an hour later returned to let us know that it was all normal. We decided to keep the VEEG going tonight just in case she has another seizure. They were going to keep her another night anyway because she’s not eating well. Emerson only wants to eat plain Cheerios and water. We’ve tried to entice her with all her favorite things, like pancakes, bacon and cookies, and even resorted to potato chips and froot loops, but she wasn’t interested!
So where we are at now is figuring that her seizures are what the neurologist called “afebrile febrile seizures”, meaning they are similar to febrile seizures in how they occur, but they are different in that they aren’t caused by a rapid drop or spike in temperature. How she described it was that the virus acts on the cells of the brain in a way that the brain could react with no seizure or seizure, and her brain chooses the seizure route. Something like that. So it’s not the kind of answer I like to hear, but it’s good to hear it’s probably not epilepsy, and she will probably outgrow it. Still, I like to have clear answers!

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Today my parents came to spend some time at the hospital, which was great, since I needed lots of help calming her when she got cranky! Plus, they brought me jelly beans and Cadbury mini eggs 🙂

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It took us forever to get her to sleep tonight because she only had one short nap this morning and she was so overtired!!

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A doctor just came in to examine her and I said no!!! Sorry buddy, I’m not letting that happen!

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Hopefully she will sleep all night and I can get some much-needed rest!
Thanks to everyone for their support and kind words…it makes me feel great to have so many people in my life who care. Brian and I appreciate it!